Friday, July 29, 2016

Cystinosis: Really an Orphan for Developing world

I completely agree with Dr Ravi R paper on difficulties we face in treating children with rare disorders like Cystinosis and aHUS where noone seems to help these children with drugs and treatment and we struggle for it. Appreciate Dr Ravi's foundation on Cystinosis.
CYSTINOSIS a truly orphan disease - Report of the Cystinosis Foundation India | Rajan | Rare Diseases and Orphan Drugs


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